Mast cell activation and ME after dengu viral infection
My brother has ME from last 2 yrs .ME onset has been after Dengue viral infection (DNVE). He has post exertional malaise , extremely fatigue not able to do any activities , bed bound sitwation is there...
View ArticleCould this be IT ? - brain inflammation
I know you're brainfoggy as hell, we all are ! But please read this, it might give you something really important to work with. Please give it a read, the whole thing, I promise it isn't that long....
View ArticleElevated CU index - Autoimmune Mast Cell Disease?
My new immunologist had me do a test recently called a CU index. I had an elevated result with autoantibodies against IgE. More info on CU index if interested...
View ArticleKetotifen to spare?
Does anyone have Ketotifen to spare for a good friend of mine? Production has stopped and there is no alternative. Her symptoms are returning. If this isn't allowed, I apologise.
View ArticleDo Corticosteroids or Glucocorticoids help?
Do Corticosteroids or Glucocorticoids help your symptoms? I'm talking about hydrocortisone, Prednisone, Cortisone, Dexamethasone, Budesonide, etc. Do they help control the inflammation? Thanks.
View ArticleIs This Considered Pressure Urticaria? Or Dermatographia?
I've been wondering if anyone else experiences this. If I press my hand let's say on my face too long the area where the pressure was will turn very red. Not itchy or raised but a little hot. This can...
View ArticleList of all your MCAS symptoms
What are your symptoms of MCAS and what triggers it? Thanks.
View ArticleWhat kind of doc diagnosed your MCAS?
I have a new dx of hEDS and dysautonomia (they want a full autonomic work up before deciding which kind). I have been having flushing and weird reactions for as long as I can remember, but the last...
View ArticleAntihistaminic flavonoids: Quercetin, Rutin... especially Luteolin
I want to try these. Any experience with them? http://onlinelibrary.wiley.com/doi/...sCustomisedMessage=&userIsAuthenticated=false Luteolin is the strongest (of those three mentioned at least) but...
View ArticleCritiques of common conceptions of MCAS
https://atomicchesterton.blogspot.com/2020/06/critique-of-concept-of-mcas.html?m=1
View ArticleUK MAST Specialists
Hello I am now dealing with escalating MAST symptoms. Primarily bowel, but others too. I have 20 yrs of CFS & Crohn's too. Now the food is MAST triggering my CFS and I can barely eat anything. I...
View ArticleHow to get medical help for MCAS in the UK?
Hello all. If anyone is interested here are my recent ventures. I have recently had an MRI scan in London at the Medserena clinic. My images were then forwarded to Dr. Gilete in Barcelona. This was...
View ArticleWith what to start if I have food and supplement intolerance
This just happened 2 months ago after an infection and subsequent course of amoxicillin for 8 days. Since then I developed ocasional rashes in my body, itching, restlessness, headache, migraine,...
View ArticleMCAS: What meds helped you most?
I just gut diagnosed MCAS from IMD Berlin laboratory and started a treatment two weeks ago. I am wondering what medications helped you most and what combinations did you end up taking? IMD Berlin...
View ArticleQuercitine issues
Seems like it helps Inniatlly but has bad rebound, esp the next day. Apples seem fine though. Any body else had this issue, or have ideas on whats happening/maybe how to stop it? Ive tried 3 different...
View ArticleStrange extreme urine issue at night; any MCAS people also have this?
I'm wondering whether this is consistent with MCAS, which is that on some nights I wake up a few hours after going to sleep and there's a lot of urine, whereas other nights I can go 12+ hours at night...
View ArticleSleep apnea, MCAS, sleeping in an upright position.
Doing a search for "mcas sleep apnea" on google this was posted on the first result page: "Sleep apnea, almost always obstructive, is found in 15% of MCAS patients and curiously occurs not uncommonly...
View Articlelooking for alternative to taking pepcid
hi my new doc thinks that i have mast cell and wants me to start taking Allegra and Pepcid . I was not "all there" at my appointment. when I got home and realized that Pepcid is a "acid blocker" I...
View ArticleMexican Oregano for MCAS: is powder or dried leaf is best?
I read this article: https://www.lutimax.com/news/2017/11/luteolin-rich-foods-to-add-to-your-diet/ And then looked at what's available online. I came upon not just the dried leaf but also the powder...
View Article