MCAS makes eye(s) suddenly blurry
A blogger is reviewing Afrin's Occam book and quotes him: The second most common eye-related complaint I’ve encountered is brief, unprovoked episodes (typically a minute or two, sometimes shorter,...
View ArticleCan some MCAS symptoms be due to it causing autonomic neuropathy?
I came about a thread on a different forum that included two people talking about their symptoms, which included a few consistent with autonomic neuropathy. I too have postural hypotension (in fact, if...
View ArticleGenetic test for tryptase
Hi, Anyone did this genetic Tryptase test with the value of 10 and a has this mutation ? https://genebygene.com/tryptase/ Looking forward for your reply's. Kind regards, Nasaud
View ArticleMCAS testing suggestions please
my new doc thinks i have MCAS. we did some tests which all seem to be negative. I believe someone posted either here or on another thread a link to a list of tests and a shorten treatment protocol by...
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Which allergy meds are suggested for Mast Cell control in Lyme or Covid?
Hi all, I've been having a flare of symptoms that keep leading me to look into mast cell treatments, honestly not sure if caused by lyme/bartonella or covid, but I am not able to see a mast cell...
View ArticleQuestion re: serum tryptase levels
Hi, has anyone possibly looked at serum tryptase levels? Can 13-14 ng/mL indicate the presence of MCAS in your opinion? I'm asking, because anything over 11.5ng/mL warrants further evaluation based on...
View ArticleIrritable Bowel Syndrome caused by MCAS? New report.
https://www.aninews.in/news/science...ehind-irritable-bowel-syndrome20210124231230/
View ArticleMAST CELL ACTIVATION SYNDROME (MCAS) and the Microbiome
Interesting post written my Ken https://cfsremission.com/2020/12/17/mast-cell-activation-syndrome-mcas-and-the-microbiome/ Sincerely, Nasaud
View ArticleMast cell activation syndrome is not what it seems
Many doctors present mast cell activation syndrome as if it's a syndrome where someone mast cells are on high alert for noreason, or for an idiopathic and possibly genetic reason, and so they get...
View ArticleNew type of "MCAS attack" at night.
I've been trying to figure out how to sleep best, because if I sleep on my back the post-nasal drip apparently leads to a bronchospasm at some point (I wake up gasping for breath, feeling like I can't...
View ArticleAnyone taking montelukast, and if so, what does it help with?
An older relative who was diagnosed with CFS a few decades back and has some MCAS symptoms, including asthma, has been taking montelukast for a quite some time to deal with her asthma, and I'm...
View ArticleI'm currently exploring the connection between humidity levels and MCAS.
I have now slep well for a week with a blanket over my head (it's a light blanket and there's an air pocket, so that my nose is never right up against the blanket), and I think it's related to the...
View ArticleIs niacin the key to MCAS?
After I read this article (which someone posted in this forrum): https://nkalex.medium.com/the-team-...who-seem-to-have-solved-long-covid-5f9852f110 I decided to try niacin in the nicotinic acid form....
View ArticleWhat to do when you can't tolerate any medications?
Hi! So I suddenly got pretty severe MCAS earlier this year. I have a doctor who is very MCAS aware, but we have had basically no success treating it because I react to essentially all medications...
View ArticleLong-COVID and CFS/ME are not MCAS
The inducement for this post is the growing publicity of the theory that Long-COVID is just a simple disease in disguise, such as MCAS, and that there is a quick solution around the corner. For MCAS, a...
View ArticleStrange extreme urine issue at night; any MCAS people also have this?
I'm wondering whether this is consistent with MCAS, which is that on some nights I wake up a few hours after going to sleep and there's a lot of urine, whereas other nights I can go 12+ hours at night...
View ArticleCauses of MCAS?
Hi all, I'm wondering if anyone has any info on what are the possible causes of MCAS? And if someone's looking to try to address the root cause of their MCAS what areas should they look into, and in...
View ArticleNasty adrenaline rush during the early morning hours!
I often wake up around this time, 5 to 7 AM, but I get right back to sleep (and lately I've been sitting up a bit using three pillows at this time). This morning, around 5:15 AM, I got the two extra...
View ArticleMCAS Myths
I've found this website helpful as I've learned about mcas. I've been learning from various sources like articles written by people with mcas, doctors, doctor presentations, and from one of my doctors...
View ArticleLong Hauler trying to prepare for a 24h urine test
Hello MCAS folks, I am a Covid Long-Hauler. For a while I have been wondering if what I am experiencing is part of MCAS, given that is the case with many other suffering post-Covid. I DO NOT have the...
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