Dihydroquercetin for MCAS
Interesting post by Mister Ken, https://cfsremission.com/2021/06/14/dihydroquercetin-and-mast-cells-histamine-issues/ This seems a superior option then quercetin. Anybody used it ? Kind regards, Nasaud
View ArticlePoll: Mast cell and histamine degradation genotypes
I know that there has been one poll on how frequently MCAS co-exists with CFS/ME. But I could imagine that some of the negative cases just are not perceived as MCAS when, in fact, the mast cells might...
View ArticleVery dizzy after consuming kefir. MCAS?
I have a history of anaphylaxis and lots of food intolerances. Late last year I tried drinking kefir and after consuming it for a week I started to get severe dizziness. To the point it was not safe to...
View ArticleHas anyone managed to considerably improve or even cure their MCAS (with say...
So as the title suggests I'm wondering whether anyone's managed to improve their MCAS by fixing other ailments, ideally to the extent they can come off MCAS mediator medications or even tolerate...
View ArticleHas anyone recovered from MCAS
It seems like it can have many triggers; infection, toxins, trauma, food etc.. Has anyone had success in healing this by treating underlying factors? It seems as though there is always a trigger and...
View ArticleLong covid, mold and mcas--Lake Tahoe 2.0?
https://openletteropenmedicinefoundation.com/long-covid-and-environmental-toxins-lake-tahoe-2-0/ Heres a short post I made on my website about long covid and mold. Hopefully google indexes it soon. For...
View ArticleCritiques of common conceptions of MCAS
https://atomicchesterton.blogspot.com/2020/06/critique-of-concept-of-mcas.html?m=1
View ArticleWhen do you know it's time to switch H1 antihistamines?
Well it looks like the adrenaline rush with high pulse that I experienced during the middle of the night a month ago was due to the loratidine no longer working. I've also had a really bad runny nose...
View ArticleDo Covid Vaccines trigger reactions in MCAS patients?
I've not had the vaccine so far as I'm worried how I'll react. And I'm completely isolated on account of my ME/CFS so I considered the risk of catching Covid much lower than having a bad reaction to...
View ArticleInterchange of symptoms
Sorry for making two posts in quick succession. I'm not sure I have MCAS but I'm exploring the possibility that mast cell activation is at play with my symptoms. Does anybody ever experience one set of...
View ArticleOver the counter MCAS treatment
I'm looking for OTC MCAS treatments to try to see if they have any effect. My doctor has left me in charge but without the prescribing power. I'm under UK jurisdiction. H1 blockers are widely...
View ArticleProblems with Mast Cell stabilizers
So I'm at my wit's end a bit this evening. I'm currently on a plan from my MCAS doctor to take Mast Cell stabilisers in the hope it calms my symptoms, but I've just tried a new one (Ketotifen) and I'm...
View ArticleMast Cell Activation Symptomatology
This is what is probably affecting some of us. Worth watching: Mast Cell Activation Symptomatology (Part 1 of 3) Mast Cell Activation Symptomatology (Part 2 of 3) Mast Cell Activation Symptomatology...
View ArticleAllergy / Mast cell treatments
Ok, so after 7 years of modifying my diet (wahls now) and experimenting with energy and detox supplements, I realize now that allergies / mast cells are still a problem for me despite avoiding all my...
View ArticleME/CFS is a mast cell disorder (hypothesis)
This is a non-exhaustive list of symptoms associated with mastocytosis and/or mast cell activation syndrome: abdominal pain intestinal cramping and bloating diarrhea and/or constipation nausea...
View ArticleIs Roemheld Syndrome due to MCAS?
Not only do I have bloating and tachycardia, but when I was in my young teen years, and first lost consciousness after developing light-headedness and cold/clamy skin, one doctor around that time said...
View ArticleMy experience with oral ketotifen (powder in capsule).
I am going to discontinue tomorrow, at least temporarily, because it makes me feel very tired, and unlike with Benadryl, that feelings lasts for hours. I did notice that my runny nose is much better...
View ArticlePalmitoylethanolamide (PEA) to deactivate mast cells
Friends, I have been suffering from an intense mast cell activation flare due to the Moderna Covid vaccine. While researching treatments into MCAS, I came upon an blog talking about how both CBD and...
View ArticleList of all your MCAS symptoms
What are your symptoms of MCAS and what triggers it? Thanks.
View ArticleMCAS elimination diet: tips and tricks?
Hey folks, here’s a place to post your MCAS safe-food wisdom! I’m finally starting to get a handle on my MCAS food and skin product sensitivities… it’s blowing my mind how many things I react to, but...
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