MCAS makes eye(s) suddenly blurry
A blogger is reviewing Afrin's Occam book and quotes him: The second most common eye-related complaint I’ve encountered is brief, unprovoked episodes (typically a minute or two, sometimes shorter,...
View ArticleAutoimmune MCAS
Does anyone here have autoimmune MCAS? I'm exploring every major possible mechanism of mast cell activation. I'm trying to decide if I should also test for autoimmunity IgE-receptor Antibody...
View ArticleMCAS diagnosis
Is high Leukrotrine and tryptase enough evidence for MCAS? The doctor want to put me under fexofenadin (my gut dont like it) Pentatop (Cromolyn) and Daosin. This stuff is expensive in Germany, are...
View ArticleCarnivore diet
Anybody with a mast cell disorder try it? I'm still pretty reactive, but over the past few days I've been easing into it with one carnivore meal a day. After my Xolair next week I'm going to go full...
View ArticleH2 Blockers Worth It?
I have a MCAS diagnosis and have been on both H1 (allegra) + H2 (Zantac) blockers 2x/day for several months now, per recommendation from my ME & Lyme doctors. In addition I'm taking quercetin and...
View ArticleWhere can I buy oral cromolyn?
I wanted to try cromolyn orally so I had my doctor prescribe it. I went to my local pharmacy with the prescription, but the pharmacist told me that cromolyn is not available in pills but only available...
View ArticleGentleDerm - reactions?
Hello - I'm looking into MCAS + have been trying GentleDerm. Thing is I seem to have reacted to it! Red skin, raised blotches and weird red pimples - all my usual friends. I could be reacting to...
View ArticleBest mcas treatement to ask for in uk
Hi I know I suffer with mcas. I'm in the UK and am unaware of what treatment to try. I just listened to Ron Davis's New Zealand radio podcast which mentioned that there are treatments for mcas which...
View ArticleMCAS + immunesystem
I read on several (German) MCAS websites warnings that ppl. with MCAS should not use any immune stimulation or boosting drugs or herbs. doings so will worsen the illness over the time, they say MCAS...
View ArticleBurning eyes excessive tears
My eyes occasionally have been burning with a lot of tears coming out with redness all around skin around eye like a rash. Could this be mcad related anyone experience this? I haven't noticed really...
View ArticleNasal mast cell stabiliser
I don't actually have MCAS, but this seemed like best place to post this thread... I am using Nasalcrom spray for seasonal allergies - a sodium cromoglicate nasal spray. The instructions with it aren't...
View Article2 schools of thought you will encounter with MCAS
Type 1: This Immunologist/doctor uses a holistic approach and makes the diagnosis of MCAS based on a plethora of blood/urine and other testing, clinical symptoms and if drugs like antihistamines and...
View ArticleMast cell meds/adrenals
A family friend who's a retired GP thinks I have MCAS and suggested trying an otc h1/h2 blocker to help curb my food intolerances. However, I was nervous because of how generally frail and sensitive I...
View ArticleMastocytosis
I’m new to learning about this https://www.nhs.uk/conditions/Mastocytosis/
View ArticleCurrent fav MCAS med: Phenibut
An excellent mast cell stabilizer. Potent at small doses and very well absorbed. And since my body somehow deactivates drugs proportionally to how sensitive my MCAS is, it’s great, as I don't have to...
View ArticleJust Dermatographism or MCAS?
A couple of weeks ago, the back of my shoulders started feeling itchy and tight. The itchiness progressed to my neck, chest, face, arms, and legs over the next couple of days. The worst day also...
View ArticleLog: MCAS with Primary Immunodeficiency
Hi everyone, I thought I'd start a log detailing my treatment with MCAS and Primary Immunodeficiency (antibody deficiency). But before that here's the theme to this log: Life to Fix by The Record...
View ArticleDilemma
I'd like to test an OTC anti-histamine (too unwell to actually get to an immunologist) to see if it would help my food sensitivities/histamine reactions. However, Zyrtec contains lactose and Telfast...
View ArticleWhat to do when you can't tolerate any medications?
Hi! So I suddenly got pretty severe MCAS earlier this year. I have a doctor who is very MCAS aware, but we have had basically no success treating it because I react to essentially all medications...
View ArticleMCAS, Quercetin, DAO, and MIGRAINE
I've been feeling my food issues coming back, so I decided to order quercetin as I have never taken that alone before (just in my neuroprotek). I took it for the first time this morning, and got a...
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